|
Support Groups...
|
|
Young Onset
|
Central Florida Young Onset Support Group
Florida Hospital S.D.A. Church
2800 N. Orange Ave.
Orlando, FL 32804
e-mail: SEPDA
Phone: (407) 489-4124
Meeting Info: New group will be forming soon... check back for updates.
Upcoming Meetings -
tbd
Future topics - pharmaceuticals,
clinical trials
|
|
Patients & Carepartners
|
Altamonte Florida Support Group
Family Resource Center
601 E. Altamonte Drive, Bldg. # 6
Altamonte Springs, FL 32701
e-mail: Parkinson Outreach Center
Phone: (407) 767-7862
Meeting Info: Every 4th Tuesday, 10:00am
Directions:
The Family Resource Center is a separate building from the main hospital and is next door to Dunkin' Donuts. Free parking
is available in the hospital visitors' parking, lot 6, or the parking garage. Limited parking is available in rear of the
building. Free valet parking is available at the front of the hospital. Transportation assistance may be requested at the
front desk of the hospital.
|
|
Patients & Carepartners
|
Orlando Florida Support Group
Florida Hospital S.D.A. Church
2800 N. Orange Ave.
Orlando, FL 32804
e-mail: Parkinson Outreach Center
Phone: (407) 767-7862
Meeting Info: Monthly 2nd Thursday 10:00 am
website: Florida Hospital Neuroscience Institute
|
|
Others
|
|
|
Physicians...
(click on the images for details)
|
|
Listing of Neurologists, Movement Disorder Specialists and other Physicians in Florida (Courtesy of NPF).
|
|
Patients' Perspective...
(click on the images for details)
|
|
The stories of PD patients who have participated in clinical trials - sharing their perspective so others can make an informed
decision to participate in the advancement of Parkinson therapies.
|
|
Follow one patient's journey through Deep Brain Stimulation (DBS) therapy, as
written by her carepartner.
|
|
|
|
DRUGS CONTRAINDICATED FOR PARKINSON'S DISEASE PATIENTS
The term "contraindicated"
essentially means that the drug in question should not be given to a Parkinsonian. In Parkinson's disease, the basic problem
is the chemical nature of the disease itself. Many drugs alter the brain's dopamine system and may not be recognized as having
a potential detrimental effect on Parkinson's disease simply because the drugs are employed for the treatment of other conditions.
All patients with Parkinson's disease should have a list of these drugs available for their physician's reference and for
emergency situations.
This list was compiled by Paul A. Nausieda, MD, Director
of the APDA Information & Referral Center, Milwaukee, Wisconsin. 1800-972-5455. The American Parkinson Disease Association,
Inc. is making this list available in an effort to reduce problems that may be caused by these drugs in patients with Parkinson's
disease.
| DRUG-CATEGORY |
TRADE NAME |
GENERIC NAME |
|
| Antipsychotic |
Haldol |
Haloperidol |
|
Trilafon |
Perphenazine |
|
Thorazine |
Chlorpromazine |
|
Stelazine |
Trifluoperazine |
|
Prolixin, Permitil |
Flufenazine |
|
Navane |
Thiothixene |
|
Mellaril (high dosage) |
Thioridazine |
|
Loxitane |
Loxapine HCL |
| - |
| Antidepressant |
Triavil |
Combination of Perphenazine & Amitryptyline |
|
|
Ascendin |
Amoxapine |
|
* Nardil |
Phenelzine |
|
* Parnate |
Tranylcypromine |
| - |
| Antivomiting |
Compazine |
Porchlorperazine |
|
Reglan |
Metoclopramide |
|
Torecan |
Thiethylperazine |
| - |
Miscellaneous,
Blood Pressure,
Post-Op Medications |
Serpasil |
Reserpine |
|
Raudixin |
Rauwolfia Serpentina |
|
Rauverid |
none |
|
Wolfina |
none |
|
Harmonyl |
Deserpine |
|
Moderil |
Rescinnamine |
|
Rauwiloid |
none |
| - |
| Narcotic, Analgesic |
* Demerol |
Meperidine |
| - |
| Various |
Aldomet |
Alpha-methyldopa |
|
Dilantin |
Phenytoin |
|
Lithium |
none |
|
Buspar |
Buspirone |
| - |
|
* With Eldepryl Treatment |
|
|
Products for PD Patients...
(click on the images for details)
|
|
From the first moment of her Parkinson’s diagnosis, author Jackie Christensen
took charge and educated herself on every aspect of her condition. Now, as a "patient-expert," she guides those newly diagnosed
step by step through their first year with Parkinson’s. Click on the book to visit Amazon.com for more info.
|
|
Fantastic new software which helps a person with hand tremor to better use the computer's mouse. Click on the mouse and visit
Tunic Software's home page to download a free trial version.
|
|
Become a member of the Medic Alert family. SEPDA has partnered with the Medic Alert Foundation to offer 20% off of the first
year fee. Join SEPDA and email us for the promotional code to use when you sign up.
|
|
The "Managing Parkinson's
Disease" kit is a valuable resource that includes information about treatment options and lifestyle changes that
can help people living with Parkinson's disease and their caregivers to better manage this condition.
|
|
The mission of the LSVT® Foundation is to insure that speech treatment has a prominent
role in the care of patients with Parkinson disease and other neural conditions. Positive speech treatment effects carry the
added benefit of improved self-confidence and some measure of control over a significant symptom of Parkinson disease.
|
NOTE: listing of product here is for informational purposes and not considered
an endorsement by SEPDA.
|
Free Publications available to download... |
|
The Southeast Parkinson Disease Association, in conjunction with
NPF, can offer a number of free publications for anyone who is interested in a variety of topics regarding Parkinson disease.
We offer publications in English and in Spanish (below on this page).
In English
* Activities of Daily Living:
Practical Pointers for Parkinson Disease
* NPF Brochure: Should You Volunteer? PD Research Studies
* NPF Brochure:
Your Guide to Parkinson Disease
* Parkinson Disease: Caring and Coping
* Parkinson Disease: Fitness Counts
* Parkinson
Disease: Medications, 3rd Edition
* Parkinson Disease: Nutrition Matters
* Parkinson Disease: Speech and Swallowing,
2nd Edition
* Parkinson Disease: What You and Your Family Should Know
* "Parkinson Report" (Quarterly)
* Practical
Guide to Parkinson Disease for Practitioners
En Español:
* El Mal de Parkinson: El Cuidado y la Adaptacion Necesaria
* El Mal de Parkinson: La Nutricion es Importante
* El Mal de Parkinson: Lo Que Usted y Su Familia Deben Saber
*
La Enfermedad De Parkinson: Estar En Forma Cuenta
* Medicamentos para la Enfermedad de Parkinson, 3ra Edicio
* ¿Debería
Participar?
Envie su direccion postal via forma electrónica y le enviaremos una lista de nuestros libros. Todos GRATIS.
Please click on the book above to navigate to the NPF page to download the Adobe Acrobat Reader formatted files.
|
